No Myolyse is an association governed by the French law of July 1 st , 1901.
No Myolyse is a non-profit organization founded in 2019.
The main goals of No Myolyse are:
Get the myolysis to be known and raise public awareness about the existing rare genetic disorders linked to it.
Listen, gather, and support the families
Inform on latest medical researches about the myolysis, Tango2, Lipin1…
Collect donations and raise funds to support medical research.