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No Myolyse is an association governed by the French law of July 1 st , 1901.

No Myolyse is a non-profit organization founded in 2019.

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The main goals of No Myolyse are:

  • Get the myolysis to be known and raise public awareness about the existing rare genetic disorders linked to it.

  • Listen, gather, and support the families

  • Inform on latest medical researches about the myolysis, Tango2, Lipin1…

  • Collect donations and raise funds to support medical research.


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